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| title | chunk | source | category | tags | date_saved | instance |
|---|---|---|---|---|---|---|
| Disease registry | 2/2 | https://en.wikipedia.org/wiki/Disease_registry | reference | science, encyclopedia | 2026-05-05T07:27:58.923750+00:00 | kb-cron |
=== Pay-for-performance (P4P) === Registries can be associated with pay-for-performance (P4P) quality based contracts for individualhealth care providers, groups of or even all doctors in a country. For example, the United Kingdom, rewards physicians according to 146 quality measures related with 10 chronic diseases that are tracked electronically. In 2017 in the United States, Medicare started a 1.5% P4P contract based on health measures that can be tracked by disease registries.
== Technical aspects of data tracking == The quality of a disease registry is contingent on the quality of its data and all the processes involved in updating it and keeping its integrity. In every registry there is always a risk of "garbage in, garbage out". Issues that can affect a registry and its acceptance by a physician group:
Is the registry only updated centrally or can a physician update or correct it? For example, a physician does not want to get reminders from a registry regarding diabetes patients that died, moved to another state or left her/his practice. Most frequently, a list of patients with a certain condition (e.g. diabetes) is generated based on certain criteria. In the U.S., Healthcare Effectiveness Data and Information Set (HEDIS) criteria are set annually by the National Committee for Quality Assurance (NCQA). These criteria, in order to avoid paper charts reviews are in most cases based on insurance claims. For example, for diabetes, HEDIS selects an eligible population based on age (18–75 years), continuous enrollment with a certain health insurer and certain "Events/diagnosis" from pharmacy data (electronic), insurance claims data (electronic) or from medical records. Pharmacy data is based on a list of medications prescribed for diabetes. Claims data is based on having two outpatient visits with a doctor or one inpatient hospital admission or one emergency room visit with the diagnosis of diabetes. Patients are excluded if they have polycystic ovaries or just gestational diabetes. Despite the strict criteria it is possible for physicians to have patients on their registries that are not truly diabetic.
== See also == Clinical trials registry
== References ==