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| title | chunk | source | category | tags | date_saved | instance |
|---|---|---|---|---|---|---|
| History of eugenics | 11/12 | https://en.wikipedia.org/wiki/History_of_eugenics | reference | science, encyclopedia | 2026-05-05T03:59:37.158532+00:00 | kb-cron |
Dor Yeshorim, a program which seeks to reduce the incidence of Tay–Sachs disease, cystic fibrosis, Canavan disease, Fanconi anemia, familial dysautonomia, glycogen storage disease, Bloom Syndrome, Gaucher disease, Niemann-Pick disease, and mucolipidosis IV among certain Jewish communities, is another screening program which has drawn comparisons with liberal eugenics. In Israel, at the expense of the state, the general public is advised to carry out genetic tests to diagnose these diseases early in the pregnancy. If a fetus is diagnosed with one of these diseases, among which Tay–Sachs is the most commonly known, the pregnancy may be terminated, subject to consent. Most other Ashkenazi Jewish communities also run screening programs because of the higher incidence of genetic diseases. In some Jewish communities, the ancient custom of matchmaking (shidduch) is still practiced, and some matchmakers require blood tests so that they can avoid making matches between individuals who share the same recessive disease traits. In order to attempt to prevent the tragedy of infant death which always results from being homozygous for Tay–Sachs, associations such as the strongly observant Dor Yeshorim (which was founded by Rabbi Joseph Ekstein, who lost four children to the disease) with the purpose of preventing others from suffering the same tragedy test young couples to check whether they carry a risk of passing on fatal conditions. If both the young man and woman are Tay–Sachs carriers, it is common for the match to be broken off. Judaism, like numerous other religions, discourages abortion unless there is a risk to the woman, in which case her needs take precedence. The effort is not aimed at eradicating the hereditary traits, but rather at the occurrence of homozygosity. The actual impact of this program on allele frequencies is unknown, but little impact would be expected because the program does not impose genetic selection. Instead, it encourages disassortative mating.
=== Ethical re-assessment === Which ideas should be described as "eugenic" are still controversial. Bio-ethicists Stephen Wilkinson and Eve Garrard note that due to its history, "there's no overwhelming argument for completely abandoning the term 'eugenics', but concerns remain about ambiguity, confusion and manipulation, and the consequent failure to respect people's autonomy." The pair argue that anyone using the term "must at least be clear about what they mean by it and be prepared to offer a clear definition. Otherwise unnecessary confusion and disagreement may ensue." Modern inquiries into the potential use of genetic engineering have led to an increased invocation of the history of eugenics in discussions of bioethics, most often as a cautionary tale. Some suggest that even non-coercive eugenics programs are inherently unethical. James D. Watson, the first director of the Human Genome Project, initiated the Ethical, Legal and Social Implications Program (ELSI) which has funded a number of studies into the implications of human genetic engineering (along with a prominent website on the history of eugenics), because:
In putting ethics so soon into the genome agenda, I was responding to my own personal fear that all too soon critics of the Genome Project would point out that I was a representative of the Cold Spring Harbor Laboratory that once housed the controversial Eugenics Record Office. My not forming a genome ethics program quickly might be falsely used as evidence that I was a closet eugenicist, having as my real long-term purpose the unambiguous identification of genes that lead to social and occupational stratification as well as genes justifying racial discrimination. Philosopher Philip Kitcher, writing in 1997, has described the use of genetic screening by parents as making possible a form of "voluntary" eugenics. In 2006, Richard Dawkins stated that breeding humans for traits is possible and society should not be afraid to debate the ethical differences between breeding a child for an ability versus forcing a child to gain an ability through training. Historian Nathaniel C. Comfort wrote in 2012, "The eugenic impulse drives us to eliminate disease, live longer and healthier, with greater intelligence, and a better adjustment to the conditions of society." Comfort claims, "the health benefits, the intellectual thrill and the profits of genetic biomedicine are too great for us to do otherwise." Bill McKibben suggests that emerging reprogenetic technologies would be disproportionately available to those with greater financial resources, thereby exacerbating the gap between rich and poor and creating a "genetic divide". Lee M. Silver, a biologist and science writer who coined the term "reprogenetics" and supports its applications, has expressed concern that these methods could create a two-tiered society of genetically engineered "haves" and "have nots" if social democratic reforms lag behind implementation of reprogenetic technologies.
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